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April 2008 - Very briefly, for those that don't know who she is, Alice is a member of the Wexler family who helped discover the marker for Huntington's Disease. Her father, Dr. Milton Wexler, started the Hereditary Disease Foundation in 1968 http://www.hdfoundation.org/aboutus.php. Dr. Nancy Wexler, is the President of the HDF [http://www.hdfoundation.org/bios/nancyw.php] is her sister. Alice wrote "Mapping Fate A Memoir of Family, Risk, and Genetic Research" that was published in 1995.

The new book will be released in September 2008, however if you pre-order from Amazon you get a 5% discount. My total price was $28.50 including shipping & handling. However I found it offered on eCampus for $23.40 after I placed my Amazon order of course! See links below to order.

From another search find it appears the idea for this book may have started with an article Alice published in 2002 [if anyone can get a copy of that article I'd appreciate it!. See below description on this article.

The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease
by Alice Wexler (Author) - Publisher(s): Yale University Press

 

  • Edition: 1st Hardcover
  • Author(s): Alice Wexler
  • Hardcover: 272 pages
  • Language: English
  • ISBN10: 0300105029
  • ISBN13: 9780300105025
  • Format: Trade Book
  • Pub. Date: 9/22/2008

 

Availability: This title has not yet been released. You may pre-order it now and we will deliver it to you when it arrives.

Product Description: A groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as "the witchcraft disease"

Review - "Wexler provides an accessible account of a disease in history. A richness of context gives her study its strength and character." - Charles E. Rosenberg, Harvard University [an American Professor of the History of Science and the Ernest E. Monrad Professor in the Social Sciences at Harvard.]

Overview: When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America.

Starting with the life of Phebe Hedges, Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to “belong to the disease”; the emergence of Huntington’s chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale.

 
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